Quality-of-Life Issues With HAE

For patients with hereditary angioedema (HAE), suffering goes beyond the physical. Most feel a loss of control due to frequent, unpredictable attacks and the fear that they may face a life-threatening HAE attack. Many patients suffer from depression, fear, and anxiety, especially if they lack understanding of their condition.4

Healthcare professionals involved with treating patients with HAE must clearly understand the issues associated with this disorder and the urgency of treatment so they can communicate with and provide support to patients and their families and friends. Comprehensive care begins with disease awareness education communicated by the physician to the patient, because the physician is the vital link between the patient and his or her quality of life.14

Help your patient achieve and maintain quality of life across the patient care continuum:

  • Recognize the key role of the specialist nurse in educating and supporting C1-INH-deficient patients
  • Foster effective communication among team members involved in the patient’s care
  • Ensure dissemination of information to both healthcare professionals and patients14
  • Provide an understanding of potential attack triggers and help patients identify and implement ways to avoid them14
  • Network and share information among all specialties treating C1-INH-deficient patients so that there is a uniform, effective approach to C1-INH deficiency management
  • Encourage patients to connect with the Canadian HAE patient group.


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Tools & resources for patients

AllAboutHAE.ca offers numerous tools and other helpful resources for you and your patients who have HAE. Learn about tools & resources for patients.

HAE family brochure

This helpful booklet provides HAE families with information to help them manage their disease and live full lives. Download the HAE family brochure.