Questions About Treating Hereditary Angioedema


Q: What should I do if I have a hereditary angioedema (HAE)) attack?

A: People who experience symptoms of a laryngeal attack should get emergency help as soon as possible. A doctor who is an expert on HAE can help you determine what you should do when you have an attack. The prescribed course of treatment may depend on the location of the attack, the frequency of attacks, and the type of medications available to you. Learn about treating an acute attack of HAE.

Q: How is HAE treated?

A: HAE treatment can be divided into two categories: prophylactic and acute therapy. For acute therapy, there is only one treatment available: Berinert® ( C1-INH).

Prophylaxis treatment options include C1-INH, low-dose androgen therapy, and antifibrinolytic agents. Talk to your doctor about your treatment options.

Q: What side effects might I have with treatment, and how do I manage them?

A: The side effects you experience will depend on the treatment option used, the dosage, and how the treatment is administered.

Talk to your doctor about potential side effects based on your personal treatment and when you should call the doctor's office about a medical problem. Recording information in your HAE diary or journal will help you and your doctor track your progress and effectively manage your disease.